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Jeff Bernstein's avatar

From my wife: As a parent of an adult daughter with IDD who lives in a community residence in NY and as a special needs attorney very involved in the community, here is my take:

The cuts will be devastating and, yes, a great deal will depend on where you reside. The next fight, however, will be in connection with the promulgation of the regulations. The regulations will be very important and we need to impact them.

I agree that each State will have to determine how much it wants to spend to plug the holes created by this Big Ugly Bill but there will be cuts to services and supports. What I am hearing is that those who are already in community residences should be "ok" in the sense that their needs will continue to be met. A continuing and growing issue is staffing. Not only does this legislation seem to implement draconian cuts, but nation-wide staffing problems are exacerbated by this bill and the immigration situation. In my personal experience, the agency that provides services and supports to my daughter has lost 27 direct service professionals who were here legally received letters from ICE and decided to leave rather than face possible consequences. That means that 27 workers have to be replaced to provide adequate care to people receiving services.

I would suggest that you begin discussions with the organization that provides housing to your children as to their plans for these cuts. I would also talk with anyone you can to have the community rally around our children and demand that this legislation be pulled back. In addition I am supporting legislators at all levels, including judges, state legislators, county legislators as well as Federal legislators and let them know that you are watching and will not support people who voted for and continue to believe in these draconian measures that hurt people with disabilities, the elderly, etc.

Best Regards,

Sandy Gumerove

Saundra M. Gumerove and Associates

Attorneys at Law

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Michael's avatar

You offer scant comfort, but that's accurate information and we all realize the ground has shifted, the rules have changed, and we're in new and uncharted political waters

Dark times

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